A CMT media event, proclaiming September as CMT Awareness Month, was held in the Atrium of the Conemaugh Hospital, on Franklin Street, in Johnstown PA. The local TV channels covered the event, with nice spots on the 6:00 and 11:00 news. CMT Awareness month was proclaimed in Johnstown, Pa, by Mayor Don Zucco and in the State of Pennsylvania, by State Senator John Wozniak. Plaques were presented to J. D. Griffith, the Johnstown CMT Support leader and president of the Charcot-Marie-Tooth Foundation. The Cambria County Commissioners were also in attendance. A statement from U.S. Congressman John P. Murtha was also read by a representative of his office. The following is an excerpt from that statement.
“CMT has received too little attention for far to long. Today’s event, to highlight CMT Awareness Month, is one step in the right direction…CMT is the most common inherited neurological disorder, affecting 150,000 Americans, and it can be severely debilitating or in some cases even prove to be fatal. With such an impact, I hope we can make more people aware of this devastating disease, improve the potential for prompt diagnosis, and improve the treatment protocol to reduce or slow down the impact on those who suffer from this disease.”
Congressman Murtha, a 29-year member of Congress, has been very generous in securing funding for health care. In a conversation with him he said, “Anything I can do for CMT, please ask.” This push for awarness Initiated an effort with Conemaugh Health Systems and Congressman Murtha’s office to establish a national center for the treatment of CMT in Johnstown. A CMT Clinic is now included in the The John P. Murtha Neuroscience & Pain Institute, an affiliate of The Conemaugh Health Systems.
Please help with CMT Awareness Month 2004. Contact your elected officials mayors, state and national legislators, Governors, the President; they all have e-mail, an address or a phone number-plead your case. They are generally happy to help; they get recognition, publicity, votes and a warm fuzzy feeling. Plan an event for next September.